Updated 5.45pm with Health Ministry's reply The father of 26-year-old woman with cystic fibrosis is pleading for the government to provide his daughter with life-saving EU-approved medicine. Mandy Vella has just been discharged from Mater Dei hospital after an infection caused her deteriorating lung capacity to fall to 25 per cent. Her father says she urgently needs an €18,000-a-month treatment called Trikafta, which was approved by the EU’s medicine’s watchdog in August last year but is currently unavailable in Malta. “My daughter deserves to live,” he told Times of Malta. “I am her father. I will try anything to keep my daughter alive.” He said that while he understood the cost was high, especially during a pandemic, the medicine was the only therapy available to help regenerate her lungs. “I don’t want to have to bury my daughter,” he said. Cystic fibrosis is a genetic disease that affects around 20 people in Malta. It causes thick mucus that builds up in the lungs, digestive tract, and other parts of the body, leading to severe respiratory and digestive problems as well as other complications such as infections and diabetes. How does Trikafta work? Cystic fibrosis is...
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